My life with Autism & ADHD

Author: Kaïa

What’s it Like Having Combined ADHD?

I’ll be honest, when my therapist suggested I might have ADHD, I was skeptical. I didn’t think I had the stereotypical traits of hyperactivity, impulsivity, a hunger for danger, or loud expressions of emotion. I have friends with ADHD and I didn’t feel like I could relate with them in that way.

But as it turns out, there is so much more to ADHD…

The ADHD stereotype we’re familiar with is largely based on the male experience with ADHD. But there are 3 known types of ADHD, and potentially even more unique expressions of it that we don’t even know about yet! 

The 3 types of ADHD are: Hyperactive, Inattentive, and Combined. Hyperactive ADHD is where the stereotype originates from. Whereas, Inattentive ADHD is more common amongst women, and Combined ADHD is believed to be the most common form of ADHD.

I experience Combined ADHD which is a mix of Hyperactive and Inattentive. Though, I tend to express more Inattentive ADHD traits than Hyperactive ADHD.

I’d also like to note that since I have AuDHD, my Autism helpfully fills in many of the holes that my ADHD would otherwise leave empty. So my Autism + ADHD often do a delicate dance. Though sometimes they give up and fight it out like squabbling siblings. 

There is another misunderstanding I would like to clear up about ADHD. Its name is misleading because it inaccurately describes the ADHD experience. ADHD is not an “attention deficit”. Rather it is an attention overload. When you have ADHD you have too much attention to give. As a result it can be difficult to wrangle in and control. It’s like a small child trying to walk an 100+ lb Saint Bernard.

In reality attention is often a strength those with ADHD possess. We just don’t know how to harness and control the overpowering amount of attention we have. Give someone with ADHD a task that deeply interests them, and they’ll be able to focus more deeply on it than a neurotypical person. This is called hyperfocus. I will often be so absorbed in a task that when a friend or family member comes over to talk to me, I won’t hear them because my attention is so consumed in what I am doing.

A natural way in which those with ADHD typically try to direct their attention is through fidgeting. When I was in 5th grade, I remember one of my teachers complaining to my parents that “Kaïa draws horses all over her school work.” The teacher was convinced there was NO WAY I could possibly be paying attention if I was constantly doodling horses all over my papers. 

But in reality fidgeting is a common coping tool for those of us with ADHD. To get our BIG attention under control, we distract part of it with a mindless activity (like drawing), while the remainder of our attention focuses on the primary (more important) task at hand. I don’t remember exactly what happened afterwards with that teacher. But my parents encouraged me to keep drawing… just not too much on the work I handed in to that teacher. 

So what does Combined ADHD look like for me? Below are 10 ways I experience it. There are many more ways, but that would be a long list!

  1. I am highly creative and have an imagination that works in ways a neurotypical individual’s just doesn’t. 
  2. It is near impossible for me to sit still longer than 5 minutes. If I’m forced to sit still, you’ll inevitably see me fidgeting: doodling, stretching, changing how I’m sitting, scratching my head, twirling my hair, or taking a sip of a drink. I will do anything just to move! 
  3. It’s difficult for me to pay attention during long periods of talking (like during work meetings or a friend telling a story). No matter how much I want to pay attention, I am constantly having to remind my brain to pay attention… and even this act itself is distracting! 
  4. If I don’t make a to-do list for the next day, I will be completely overwhelmed by all the different directions my attention pulls me in. I will likely get nothing done. Fortunately, my Autism lives and breathes organization and it knows how to make tools to remedy this concern. But this takes a lot of effort!  
  5. It’s difficult for me to dive into a complex task unless I genuinely want to do that task because it takes a lot of mental energy to control my attention.
  6. If I read your text and don’t immediately respond, I will probably forget to respond for a while (until I awkwardly remember to). If I do text you back, it will usually be an “essay” of a text because I need to share all the little details my attention is grasping onto!
  7. Like your dog or cat, I too get the zoomies!  
  8. If I go to a restaurant, go shopping, or another public place, I often forget my wallet or another possession somewhere. As my grandma used to say about herself, “I’d forget my head if it weren’t attached to my body”.
  9. I lose my phone around my home all the time. Most of my other belongings have a specific place they live for this reason. 
  10. Conversations with me go off on many tangents. 

Unlike my Autism, I feel my ADHD is typically easier to navigate and work around. My Autism is a huge help in creating that work around.

You can help me too by keeping your stories succinct, letting me move around, helping me keep track of my belongings, and forgiving me if I don’t text you back immediately. Please know that I want so badly to pay attention and be present with you, but my brain has other plans! 

What is Rejection Sensitive Dysphoria?

You know when someone says something mean or otherwise reacts negatively to you, it doesn’t feel good? Well, when you have RSD (Rejection Sensitive Dysphoria) your brain sees negative social interactions everywhere.

RSD is a common condition that tags along with ADHD like a clingy toxic sidekick. In fact, I’ve read that anywhere from 90-99% of those with ADHD experience RSD. Now, I’m not sure what the exact number is, but we can assume it’s a lot of people! 

For me, RSD is without a doubt the primary way I experience ADHD. It is such a prominent part of my day to day that it is the lens through which I interpret all social interactions. As a result, I don’t know who I am without RSD. That being said, unlike other aspects of my ADHD and Autism that I consider a gift, RSD is something that I want to get as far away from as quickly as possible!

Rejection Sensitive Dysphoria is described as being like the rejection neurotypicals feel after a negative social interaction… but on STEROIDS. It is said to be a “physically painful emotional experience”. RSD takes the anger, embarrassment, frustration, and sadness of a negative social interaction to another level. When you have RSD you might also perceive positive and neutral social interactions as negative. You might dwell on a particular social interaction for days… or even weeks!

This is my experience with RSD. It whispers cruel things in my ear that I can’t help but listen to, and in listening I create a wound that begins to fester. I scratch at the wound day after day and the pain continues. 

How exactly do I experience Rejection Sensitive Dysphoria? 

  1. I am a people pleaser. I will bend over backwards to ensure that you have zero reason to dislike me because 97% of the time I can’t tell if you truly do or not. 
  2. It is extremely difficult to stand up for myself, express opposite opinions / preferences / interests, set boundaries, and make decisions that affect others because it feels like I’m sabotaging myself. It feels like I’m inviting someone to dislike me.
  3. I avoid strangers and other social interactions with new people because it is especially challenging for me to read social cues when I’m unfamiliar with someone. 
  4. I go over and over the same social interaction in my head, picking it apart and berating myself for it not having been “perfect”. 
  5. If I engage with my RSD thoughts, they’ll lead to a panic attack of confusion where I conclude that I’ll always be second best and nobody’s true “favorite”. 
  6. I try to stim away an RSD thought before it can gain traction. I’ll make a sound, say a word, or make a sudden movement to distract my brain.
  7. I get quietly enraged if someone accuses me of not giving them my best effort because I genuinely do, in order to avoid feelings of RSD. If I truly haven’t given you my best effort, it is because I trust you as someone who genuinely loves me and understands my needs. 

So as you can see, RSD is a force to reckon with. It plays games with one’s mind.

How can you help me prevent my RSD from surfacing?

  1. Over explain yourself, your behaviors, and what emotional state you are in. For instance if you receive a text from me and can’t respond immediately, let me know why. Also, whenever possible respond to a text with words (versus an emoji) so I get as much context as possible.
  2. If I let you know (or you see that) I’m experiencing an RSD moment, acknowledge it, and quickly help distract me away from it. Distraction has proven to be the most powerful tool for me when it comes to fighting RSD. 
  3. Help me talk to strangers and make an indisputably positive first impression. 
  4. Help me stand up for myself! Remind me that you support me in setting boundaries and saying “no”. It makes me feel so loved when my friends do this for me.

It is frightening that Rejection Sensitive Dysphoria is so wrapped up in my true personality. As I’ve said previously, it has been confusing trying to disentangle myself from what is neurodivergent behavior and what is me, Kaïa. It’s certainly a challenge. But with a little more emotional transparency and extra love from you, I can get there.

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